I am excited to share with you that I will be participating in the 7th Annual Miami Children’s Health Foundation 5K Run/Walk. I am making the commitment to support improved outcomes, better health and brighter futures for our children, and I am asking you to join me to support this very important cause.
Donations like yours will support Nicklaus Children’s Hospital and the Together For The Children campaign, and help to fund enhancements to the hospital and provide resources for research and innovation that directly impact the lives of the children and families who turn to them for hope each and every day.
Through your generosity, you are helping to position Nicklaus Children’s as a world leader and global destination for pediatric health and wellness. Nicklaus Children’s has among the highest 5-year cancer survival rate in the nation, the largest pediatric neurology program in the world, and survival rates after pediatric heart surgery that are second to none.
As you may already know Niccolo was born at 33 weeks via emergency c-section due to complications and deterioration from preeclampsia and HELLP syndrome. Born at 6am on October 28, 2014 weighing 3 lbs. On day 8 of life it was discovered by a head ultrasound that Niccolo had suffered the worst kind of pediatric stroke, a grade IV bilateral interventricular hemorrhage, and very little hope was given to us. They told us he may never walk, talk and his future was questionable. As we all mourned the tragic news of our brand new baby we got some type of direction from an a friend/colleague/doctor/father to transport Niccolo to Nicklaus Children's Hospital. An hour later I was received a call from a neurosurgeon from the best neurosurgery team in Florida saying "congratulations on your new baby" words that had been replaced with sorry's and we're here for you. And that was that within a few hours OUR Niccolo and I made helicopter trip to Nicklaus Children's Hospital at only 8 days old where we would then spend two months of his life along side that neurosurgery and neurology team.
There is no bigger pain then leaving a hospital with empty arms and a broke heart... that would be our life for the next 8 weeks and 4 days. During that time we spent Thanksgiving and Christmas and for it being the most difficult and trying time for us and our families NCH did so many things for us while we were there that made our time just a little bit easier and holidays not so sad. Just a moment forget about our reality and the heartache of having your baby hiding inside an incubator hooked up to monitors and being fed by others. From Christmas carols to offering mid-day snack/coffee to parents, massage Wednesdays for parents of patients, and even giving tablets and toys to us and our babies the things they did for us could never be repaid as our most vulnerable time was spent at their mercy.
Fast forward almost 3 years we now do therapy Monday through Friday, he has been diagnosed with hemipares cerebral palsy and a rare genetic condition, 1q44. At NCH the things they do to raise money for our children is incredibly admiring and like no other. NCH is part of our family and everybody that knows Niccolo has something to do with him. They all know who that kid in the red walker is.
My goal is to giveback anyway that I can to the very place that not only cared for my baby but gave me hope and returned my faith. So, I ask that you donate and walk for kids like Niccolo... who can't.
I hope you will join me by donating and help me reach my fundraising goal. You can donate or join the cause by using the buttons on this page.
Thank you for your support! Together, anything is possible.
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